Hello @rabird. You're right in that the College of Physicians and Surgeons of BC (CPSBC) has recently set new standards and guidelines for opioid prescribing. The changes are quite significant in that they have moved from guidelines (voluntary approaches) to standards (legally required approaches). Prior to this change, we heard from a lot of people who were struggling to manage their pain and we assume it will be even more challenging now that the standards have been adopted. Pain BC is working with the government and the College to try to deal with the issues these new standards cause for people in pain but it looks like an uphill battle.
We'd suggest calling or writing to the College directly to share your experience. You can direct your concerns to Dr. Ailve McNestry from the CPSBC's Prescription Review program at firstname.lastname@example.org. No person with pain should be cut off opioids abruptly or tapered too quickly. If there are adverse outcomes, the College and the Ministry of Health need to hear about it from patients.
This forum is a great place to ask for support as you will definitely not be alone. The new guidelines will affect many British Columbians.
Hello all. Thought this Pain Waves episode with Neil Pearson on moving even with chronic pain would resonate with you.
Neil Pearson PT, physiotherapist, yoga teacher, and internationally renowned pain expert joins Pain BC to discuss how to keep moving through chronic pain. He covers:
barriers to increasing your activity and how to overcome them,
practical exercises that you can try at home, and
tools like breathing, relaxation, body awareness, and quieting the mind
so a couple of days ago I got called in to see my doctor , told I had to take a drug test , sign a opiate contract , fill out a questionnaire about my illegal drug use , which there is none and told my morphine was to be cut down to 50 mg a day from 120 mg slow release--40mg ir break through . 30 years of construction ,my back is a mess . 5 years of mri's cat scans , specialists , needles in the spine , we finally got it right and now their screwing it all up ! is anybody else going through this ? Even my doc says is wrong but his hands are tied
@KamloopsLupie I'm really sorry to hear that. If you would be willing to try again, I'm sure we could get someone else to look at your situation...you never know what a different person might come up with. If you would like to contact me at email@example.com or firstname.lastname@example.org, I could look into this more and connect you to the right people. You do matter and we don't want you to "slip through the cracks."
@Tammy_Admin I have been in touch with Connect for Health and he told me that it seems that I have tried everything that he could think of. He also suggested some things that he thought would be available to me. Since my daughter was with me at the time I got the call and she has experience with services in the city for homeless and less fortunate people, anything that he suggested either wasn't available here or I had already tried it. At the end of our conversation, he told me that there was no suggestions he had for me. That's hard for me especially as I feel hopeless already and then to have him confirm that for me. I'm one of the people that slips through the cracks. Thanks for the suggestion though.
@KamloopsLupie you've been through so much. I'm really sorry you've had these trying experiences. It won't solve everything, but I wonder if you have been in touch with Pain BC's Connect for Health program? It is free and they will help you with things like filling out forms, making sure you're receiving the financial assistance you're entitled to, etc...basically everything that goes on outside the doctor's office. Call them toll free at 1-844-430-0818 (call 24/7 and leave a message) or email email@example.com.
You can read more about Connect for Health here: https://www.liveplanbe.ca/pain-education/economic-occupational-well-being/pain-bcs-connect-for-health-for-health-program
If you tell them what you're going through, they will be able to help you with a lot of the practical challenges you are facing. Best of luck and take care.
I have a good group of specialists atleast for the most part. My problem is with my family doctor. After my recent dealings with him, I have realized that I'm just a dollar sign to him. I have lupus and many other diagnoses. I need my family doctor to make sure that everything is helping me. I don't need him to tell me that because I have lupus that I need to talk to my rheumatologist about anything lupus related. I'm to talk to my neurologist about nerve pains, the kidney clinic for kidney related, my pain doctor for anything pain related, etc. Who am I suppose to talk to when I don't know what my symptoms are about???? I keep a binder of all my blood test results for taking to emerg or another doctor. I've asked my family doctor for copies of any specialist report that he gets. He wants $15 per page!!! I'm on disability and with PWD not paying anything besides rent and my bills, I've been looking for other ways to get money. I want to apply for the disability tax credit so I took my forms to my family doctor. He wants $120 to fill them out!! I can't even afford food so am I suppose to get behind in my bills just so I can pay him???? I told him that I can't get any funding to pay that and he said "I'm not gonna do it for nothing!". As there are no other family doctors taking patients in Kamloops, I have talked to walk in clinics about taking me on as a patient. Their response "We don't have time for that committment, that's what family doctors are for." I don't know what to do anymore and am getting so tired (both physically and emotionally) that I've given up. Now I just suffer in silence because I can't go to emerg as my family doctor has told them that I'm a drug seeker!!! I'm looking for some relief from my pain, not looking to get high. A 30 day prescription of hydromorphone lasted me over 6 months. I'm not an abuser of pain meds but there is only so much pain that I can put up with!! Does anyone know anything that I can do that I haven't already done??? Thanks for any help.
@SCIpain hello, it's good that you're noticing when your mind is wandering or thoughts of "this is boring" happening. When that happens, bring yourself back to the meditation, this is normal. How are you meditating? Are you saying a mantra or is it a guided meditation?
@SCIpain hello, the fact that you fell asleep while meditating was probably because you were lying down. It is best practiced in a sitting position, however you felt better when you awoke and that is important as I'm assuming you wanted to meditate to feel better.
@msm i was reading some of the articles on here and i thought this one might be helpful for you and your husband.
hope you're ok.