I Need Support
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We just got word of a support group in Surrey for people with CRPS. The focus is on CRPS self-management techniques and strategies and is led by volunteer patient facilitators.
· 3rd Wednesday of the month
· 12:00 – 13:30 in the Dr. Ambedkar Room
· City Centre Library 10350 University Drive, Surrey
· Open to anyone with a diagnosis of CRPS
You will have an opportunity to ask questions and network with peers and community support services.
Contact: Coleen Cave, firstname.lastname@example.org
We also have a list of support groups on the Pain BC website.
@ReenieG Thanks so much for sharing. It's good to hear that you have done what is best for you, given the hard year you both have had. We really admire your strength and ability to say no when you need to. Best wishes!
@KamloopsLupie I don't know...you need a family doc. They are the QB...or they should be. Keep on a waiting list. Regardless...I'm sure you've done your research but have you tried cannibis for lupus? I have seen some good posts on the internet...though I don't have lupus myself.
Getting a diagnosis of CRPS can be very hard so we can understand feeling the way you do. It's very normal to grieve the person you were before experiencing chronic pain and to think that what you are experiencing now will be forever.
The good news is that people who get relatively early intervention (as you have) with CRPS can have positive outcomes. Pain isn't a one-size fits all situation so no one can predict what will happen, but if the specialist is feeling optimistic, that is great news.
We know it's hard to remain optimistic when you are coping with pain and limited ability to walk. Here are some ideas that might help:
Research shows that a combination of physical treatments, medication, and psychological support can help manage your symptoms. If you feel comfortable, perhaps you could contact the volunteers at our Connect for Health line, who can offer you some support beyond the doctor's office. They can connect you to support services in your local community.
I came across a few resources that may be able to help you feel better. This article really gives some great tips on self-management.
How to manage and treat CRPS
We did a blog talk radio show with Dr. Brenda Lau focusing on CRPS a while ago. You can access it here.
For your family, perhaps you could show them some of our resources on the Pain BC website so they can better understand your diagnosis.
We know one of the hardest things about living with pain is coping with the emotional impact. Please know that we're here for you and that we understand.
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